I am coming up to my 7 month of treatment, 9 sessions I think. It really has gone very well and I am incredibly lucky, it is obviously working, there is little sign of the Mets in my Lungs or the lump in my chest, and the Tumour on my Kidney is certainly a bit smaller and more importantly the density is changing which indicates the blood supply to it is changing. The side effects have really been very minor, certainly compared to what happens to some poor souls on something like IL2, but I am starting to notice them and they are disrupting my life. Over the first 5 months or so there did seem to be a set pattern, 1st week after treatment, no sleep, 2nd week very disturbed sleep, 3rd week sleep like a baby, but that has all changed. A month ago I was very positive, getting into quite a good routine, eating healthily and plenty of exercise, but the last couple of weeks have knocked me sideways, I am still exercising and eating sensibly, I haven't touched alcohol for over a month, but my sleep is almost non existent. I have tried cycling late in the evening to wear me out, I have tried relaxing and reading before I sleep, I have tried Herbal concoctions and Meditation, nothing has worked, my body feels exhausted but that's it, I can only liken it to standing on a crowded train, where you are desperate to sit down, but know you have two hours of standing. I have been getting bad tremors in my hands and feet, the hands are not a problem, often happens when I am out and about, disconcerting more than anything, but the feet come on with vengeance as soon as I lie down, a bit like Restless Leg, where you have this constant need to keep twitching, making relaxing and sleep impossible.
Until you go lengthy periods without sleep you just don't realise how much it impacts on your life, on the face of it as a side effect it seems very minor, but after a couple of weeks you realise you are only existing, which is no life at all.