As the injections are 3 weekly, I was going through a cycle of getting no sleep the first week, a little the second week then sleeping like a log the third, just in time to have my next dose. So this is where the Healthy Living comes in, I have now made a plan to actively sort my health out. I am now in my third week of this, 40 mile cycle each week, sensible eating, plenty of fish, salad and fruit, and plenty of reading to relax, rather than watching DVD's, and it is going well, I am starting to notice the difference with the exercise, not so much its getting easier, because it never dose, but more my attitude to it, much more positive and much more relaxed when on me bike, the furthest I have been is 21 miles, which is not really any big deal, but I felt pretty comfortable doing it, and it was on my MTB which is always a lot harder work. Apart from the obvious physical and mental benefits of exercise, I am now getting tired in a good way, so am sleeping a lot better.
In some ways I can be quite a strong character, and my attitude to the treatment is obviously helping, I am incredibly lucky to be still here, and I am very lucky to have got onto this clinical trial, so I really don't have anything to moan about, a few sleepless nights and rough days is nothing compared to what many people have to go through.